Category: advocacy

  • DeVos and Her Purge of IDEA Guidance

    DeVos and Her Purge of IDEA Guidance

    I know, I’ve been quiet for a few months.  Frankly, I’ve started and stopped writing posts at least a dozen times over the past three or four months, and every time I get disgusted by our current political climate and stop. I feel completely helpless. We have a President who wants to reduce the health…

  • A Parent’s Perspective – Elizabeth Loan

    A Parent’s Perspective – Elizabeth Loan

    Years ago I worked for a school who only served kids with moderate to severe disabilities, primarily Autism. Part of our training was a series of lectures from other health professionals, support service agencies and other assorted individuals who worked in the field. One of the trainings was titled, “A Parent’s Perspective.” It consisted of…

  • Treatment Instead of Punishment

    Treatment Instead of Punishment

    You may have read the story when it happened.  On May 22, 2015, J’Aire Lee, three years old, was found dead on a swing in Maryland. A neighbor called the police and said his mom, Romechia Simms, had been pushing him on the swing for “an unusually long period of time.” That time turned out to…

  • Patient Advocates and Strength in Numbers

    Patient Advocates and Strength in Numbers

    I spent last weekend in the beautiful Hyatt Hotel in Jersey City, New Jersey, directly across the Hudson from Manhattan (check out that view!), at the HealtheVoices 2015.  This conference, sponsored by Janssen Pharmaceutical and Everyday Health brought together more than 60 of the best bloggers and patient activists from across the country to network…

  • Stigmatization By Another Dance Team

    Stigmatization By Another Dance Team

    An anonymous poster alerted me to Chicago’s Robert Morris University dance team and their recent 8th place finish in a dance competition.  Their costumes?  You guessed it.  Straight jackets.  (Update 3/14/11: here’s the cached version of the story and picture, as it has dissappeared from the live site) I can’t believe we’re seeing this again,…